For Families

Introduction Join the Registry Practical Information Get Involved Patient Stories External Resources Genetic Testing

For Clinicians

Introduction Flowchart for Clinicians When to Suspect Genetic Testing Disease Management Histological Findings Video about HSPB8 Disease Classification

Research

Introduction Clinical Presentation Histological Findings HSPB8 Protein Disease Pathology Research Toolkit Library Academic Groups

News & Events

News HSPB8 Videos

‍

Get Involved

‍

Fill out the Patient registry

Join our Facebook group

Join our Research Project

Reach out to us

Be the first to know

Sign up for our mailing list to receive important news about MFM13 myopathy straight to your inbox.

By subscribing you agree to with our Privacy Policy

Thank you! Your submission has been received!

Oops! Something went wrong while submitting the form.

For Families

Introduction Join the Registry Practical Information Get Involved Patient Stories External Resources A Guide to Genetic Testing

For Clinicians

Introduction Flowchart for Clinicians When to Suspect Genetic Testing Disease Management Histological Findings Video about HSPB8 Disease Classification

Research

Introduction Clinical Presentation Histological Findings HSBP8 Protein Disease Pathology Research Toolkit Library Academic Groups

News & Events

Cure MFM13 is a Project of Social and Environmental Entrepreneurs (SEE) a non-profit public charity exempt from federal income tax under Section 501(c)(3) of the Internal Revenue Code, which provides non-profit status. If you are donating by credit card, please note that Social and Environmental Entrepreneurs, or a variation of SEE, will show up on your credit card statement. Your donation is fully tax deductible.

Terms of Use Privacy Cookie Policy Accessibility Disclaimer