About
For Families
Introduction
Join the Registry
Practical Information
Get Involved
Patient Stories
External Resources
Genetic Testing
For Clinicians
Introduction
Flowchart for Clinicians
When to Suspect
Genetic Testing
Disease Management
Histological Findings
Video about HSPB8
Disease Classification
Research
Introduction
Clinical Presentation
Histological Findings
HSPB8 Protein
Disease Pathology
Research Toolkit
Library
Academic Groups
News & Events
News
HSPB8 Videos
Contact
Donate
Cure MFM13
News
Blog & News
10/15/2025
From Gene to Diagnosis: Cure HSPB8 is now Cure MFM13!
Read more
7/2/2025
Summary of a recently published review on HSPB8 Associated Neuromuscular Disorders
Read more
6/8/2025
VoLo Foundation Renews Support for Cure HSPB8
Read more
5/26/2025
Cure HSPB8 at World Orphan Drug Congress USA 2025: Accelerating the Path to a Cure
Read more
5/21/2025
Launching the Cure HSPB8 Podcast: A Resource for the HSPB8 Myopathy Community
Read more
3/14/2025
HSPB8 Myopathy is now officially MFM13
Read more
12/19/2024
A year it all started – reflecting on 2024 at Cure HSPB8
Read more
9/9/2024
Unlocking Hope for the Ultra-Rare Conference in Warsaw
Read more
6/25/2024
Cure HSPB8 and Everlum Bio Announce Strategic Collaboration to Accelerate Research
Read more
5/16/2024
Cure HSPB8 Receives Generous Funding from VoLo Foundation: A Boost for Research and Support
Read more
5/15/2024
Cure HSPB8 Joins Global Genes Alliance: Strengthening the Fight Against Rare Diseases
Read more
4/2/2024
Establishing Cure HSPB8: A New Hope for Those Affected by HSPB8 Myopathy
Read more