For Researchers

Despite its ultrarare prevalence, HSPB8 myopathy is an area of active research. Several academic groups in the USA and Europe work on elucidating the mechanisms behind the disease and developing treatments. The results of their work are published in scientific journals, below we list key academic groups and publications.

One treatment avenue researchers are pursuing is using trehalose to ameliorate the symptoms. Here you can find our summary about trehalose and HSPB8 myopathy.